Abstract
This chapter provides an overview of the five-item self-report Pandemic Grief Scale (PGS) that was developed for the purpose of quickly and effectively identifying individuals suffering from dysfunctional levels of grief due to a COVID-19 death. The initial development process and the theoretical foundations of the PGS are presented and followed by an examination of its psychometric properties across independent studies. Several translated versions of the PGS are also discussed along with scoring instructions, which may vary for some versions of the instrument. The chapter ends with a discussion of the PGS’s limitations, recommendations for future research, and concluding comments about the PGS.
Similar content being viewed by others
References
American Psychiatric Association (APA). (2013). Diagnostic and statistical manual of mental disorders (5th ed.). https://doi.org/10.1176/appi.books.9780890425596
Ashraf, F., Lee, S. A., Jobe, M. C., Mathis, A. A., & Kanwal, T. (2022). Bereavement in Pakistan during the COVID-19 Pandemic: Psychometric analysis of the Pandemic Grief Scale-Urdu Version (PGS-UV). Death Studies, 46(6), 1465–1471. https://doi.org/10.1080/07481187.2022.2048197
Beaton, D. E., Bombardier, C., Guillemin, F., & Ferraz, M. B. (2000). Guidelines for the process of cross-cultural adaptation of self-report measures. Spine, 25(24), 3186–3191. https://journals.lww.com/spinejournal/Citation/2000/12150/Guidelines_for_the_Process_of_Cross_Cultural.14.aspx
Birtchnell, J. (1970). The relationship between attempted suicide, depression and parent death. The British Journal of Psychiatry: the Journal of Mental Science, 116(532), 307–313. https://doi.org/10.1192/bjp.116.532.307
Breen, L. J., Lee, S. A., Mancini, V. O., Willis, M., & Neimeyer, R. A. (2022). Grief and functional impairment following COVID-19 Loss in a treatment-seeking sample: The mediating role of meaning. British Journal of Guidance & Counselling, 1–12. https://doi.org/10.1080/03069885.2022.2075540
Breen, L. J., Lee, S. A., & Neimeyer, R. A. (2021). Psychological risk factors of functional impairment following COVID-19 deaths. Journal of Pain and Symptom Management, 61(4), 1–4. https://doi.org/10.1016/j.jpainsymman.2021.01.006
Breen, L. J., Mancini, V. O., Lee, S. A., Pappalardo, E. A., & Neimeyer, R. A. (2022). Risk factors for dysfunctional grief and functional impairment for all causes of death during the COVID-19 pandemic: The mediating role of meaning. Death Studies, 46(1), 43–52. https://doi.org/10.1080/07481187.2021.1974666
Brown, T. A. (2006). Confirmatory factor analysis for applied research. Guilford Press.
Catlin, G. (1993). The role of culture in grief. Journal of Social Psychology, 133(2), 173–184. https://doi.org/10.1080/00224545.1993.9712135
Caycho-Rodríguez, T., Valencia, P. D., Vilca, L. W., Lee, S. A., Carbajal-León, C., Vivanco-Vidal, A., Saroli-Araníbar, D., Reyes-Bossio, M., White, M., Rojas-Jara, C., Polanco-Carrasco, R., Gallegos, M., Cervigni, M., Martino, P., Palacios, D. A., Moreta-Herrera, R., Samaniego-Pinho, A., Rivera, M. E. L., Figares, A. B., … Gallegos, W. L. A. (2021). COVID-19 bereavement in ten Latin American countries: Measurement invariance of the Pandemic Grief Scale and its relation to suicidal ideation. OMEGA: Journal of Death and Dying. Advance online publication. 10.1177%2F00302228211048566, 003022282110485.
Caycho-Rodríguez, T., Vilca, L. W., Vivanco-Vidal, A., Saroli-Araníbar, D., Carbajal-León, C., Arias Gallegos, W. L., White, M., & Lee, S. A. (2021). Assessment of dysfunctional grief due to death from COVID-19 in Peru: Adaptation and validation of a Spanish version of the Pandemic Grief Scale. Trends in Psychology, 29, 595–616. https://doi.org/10.1007/s43076-021-00091-1
DeVellis, R. F. (1991). Scale development: Theory and application. Sage.
Djelantik, A. A. A. M. J., Smid, G. E., Kleber, R. J., & Boelen, P. A. (2017). Early indicators of problematic grief trajectories following bereavement. European Journal of Psychotraumatology, 8(sup6), 1423825–1423826. https://doi.org/10.1080/20008198.2018.1423825
Eisma, M. C., Tamminga, A., Smid, G. E., & Boelen, P. A. (2021). Acute grief after deaths due to COVID-19, natural causes and unnatural causes: An empirical comparison. Journal of Affective Disorders, 278(1), 54–56. https://doi.org/10.1016/j.jad.2020.09.049
El Sayed, S., Gomaa, S., Aboelfotoh, S., & El Wasify, M. (2021). Pandemic Grief Scale in detection of grief reaction among physicians in COVID-19 era. Middle East Current Psychiatry, 28(48), 1–8. https://doi.org/10.1186/s43045-021-00130-8
Evren, C., Evren, B., Dalbudak, E., Topcu, M., & Kutlu, N. (2022). Measuring dysfunctional grief due to a COVID-19 loss: A Turkish validation study of the Pandemic Grief Scale. Death Studies, 46(1), 25–33. https://doi.org/10.1080/07481187.2021.1897179
Geisinger, K. F. (1994). Cross-cultural normative assessment: Translation and adaptation issues influencing the normative interpretation of assessment instruments. Psychological Assessment, 6(4), 304–312. https://doi.org/10.1037/1040-3590.6.4.304
Guldin, M.-B., O’Connor, M., Sokolowski, I., Jensen, A. B., & Vedsted, P. (2011). Identifying bereaved subjects at risk of complicated grief: Predictive value of questionnaire items in a cohort study. BMC Palliative Care, 10(9), 9–17. http://www.biomedcentral.com/1472-684X/10/9
Hunsley, J., & Meyer, G. J. (2003). The incremental validity of psychological testing and assessment: Conceptual, methodological, and statistical issues. Psychological Assessment, 15(4), 446–455. https://doi.org/10.1037/1040-3590.15.4.446
Joaquim, R. M., Pinto, A. L. C. B., Guatimosim, R. F., de Paula, J. J., Costa, D. S., Diaz, A. P., da Silva, A. G., Pinheiro, M. I. C., Serpa, A. L. O., Miranda, D. M., & Malloy-Diniz, L. F. (2021). Bereavement and psychological distress during COVID-19 pandemics: The impact of death experience on mental health. Current Research in Behavioral Sciences, 2, 1–7. https://doi.org/10.1016/j.crbeha.2021.100019
Johns Hopkins University & Medicine. (2022, March 8). COVID-19 dashboard. https://coronavirus.jhu.edu/map.html
Lee, S. A. (2015). The persistent complex bereavement inventory: A measure based on the DSM-5. Death Studies, 39(7), 399–410. https://doi.org/10.1080/07481187.2015.1029144
Lee, S. A., & Neimeyer, R. A. (2022). Pandemic Grief Scale: A screening tool for dysfunctional grief due to a COVID-19 loss. Death Studies, 46(1), 14–24. https://doi.org/10.1080/07481187.2020.1853885
Lee, S. A., Neimeyer, R. A., & Breen, L. J. (2021). The utility of the Pandemic Grief Scale in identifying functional impairment from COVID-19 bereavement. Journal of Palliative Medicine, 24(12), 1783–1788. https://doi.org/10.1089/jpm.2021.0103
Lundorff, M., Holmgren, H., Zachariae, R., Farver-Vestergaard, I., & O’Connor, M. (2017). Prevalence of prolonged grief disorder in adult bereavement: A systematic review and meta-analysis. Journal of Affective Disorders, 212, 138–149. https://doi.org/10.1016/j.jad.2017.01.030
Mancini, A. D., Sinan, B., & Bonanno, G. A. (2015). Predictors of prolonged grief, resilience, and recovery among bereaved spouses. Journal of Clinical Psychology, 71(12), 1245–1258. https://doi.org/10.1002/jclp.22224
Mapi Research Institute. (2012). Linguistic validation manual for health outcome assessments (2nd ed.). Mapi Research Trust.
McNeish, D. (2018). Thanks coefficient alpha, we’ll take it from here. Psychological Methods, 23(3), 412–433. https://doi.org/10.1037/met0000144
Medvedev, O. N., Pratscher, S. D., & Bettencourt, A. (2020). Psychometric evaluation of the Interpersonal Mindfulness Scale using Rasch analysis. Mindfulness, 11(8), 2007–2015. https://doi.org/10.1007/s12671-020-01415-5
Milman, E., Lee, S. A., & Neimeyer, R. A. (2022). Social isolation and the mitigation of coronavirus anxiety: The mediating role of meaning. Death Studies, 46(1), 1–13. https://doi.org/10.1080/07481187.2020.1775362
Neimeyer, R. A. (2019). Meaning reconstruction in bereavement: Development of a research program. Death Studies, 43(2), 79–91. https://doi.org/10.1080/07481187.2018.1456620
Neimeyer, R. A., & Lee, S. A. (2021). Circumstances of the death and associated risk factors for severity and impairment of COVID-19 grief. Death Studies, 46(1), 34–42. https://doi.org/10.1080/07481187.2021.1896459
Simundic, A. (2009). Measures of diagnostic accuracy: Basic definitions. Journal of the International Federation of Clinical Chemistry and Laboratory Medicine, 19(4), 203–211.
Skalski, S., Konaszewski, K., Dobrakowski, P., Surzykiewicz, J., & Lee, S. A. (2021). Pandemic grief in Poland: Adaptation of a measure and its relationship with social support and resilience. Advance online publication. https://springerlink.bibliotecabuap.elogim.com/article/10.1007/s12144-021-01731-6
Sousa, V. D., & Rojjanasrirat, W. (2011). Translation, adaptation and validation of instruments or scales for use in cross-cultural health care research: A clear and user-friendly guideline. Journal of Evaluation in Clinical Practice, 17(2), 268–274. https://doi.org/10.1111/j.1365-2753.2010.01434.x
Stroebe, M., & Schut, H. (2020). Bereavement in times of COVID-19: A review and theoretical framework. OMEGA: Journal of Death and Dying, 81(3), 370–392. https://doi.org/10.1177/0030222820966928
Tang, S., & Xiang, Z. (2021). Who suffered most after deaths due to COVID-19? Prevalence and correlates of prolonged grief disorder in COVID-19 related bereaved adults. Globalization and Health, 17(19), 1–9. https://doi.org/10.1186/s12992-021-00669-5
The Pandemic Grief Project (2022, March 5). The pandemic grief project: Helping health professionals and scholars identify people suffering from COVID-19 grief. https://sites.google.com/cnu.edu/the-pandemic-grief-project
Verdery, A. M., Smith-Greenaway, E., Margolis, R., & Daw, J. (2020). Tracking the reach of COVID-19 kin loss with a bereavement multiplier applied to the United States. Proceedings of the National Academy of Sciences of the United States of America, 117(30), 17695–17701. https://doi.org/10.1073/pnas.2007476117
Weinstein, M. C., Berwick, D. M., Goldman, P. A., Murphy, J. M., & Barsky, A. J. (1989). A comparison of three psychiatric screening tests using receiver operating characteristic (ROC) analysis. Medical Care, 27(6), 593–607. https://doi.org/10.1097/00005650-198906000-00003
World Health Organization. (2019). International classification of disease. In Prolonged grief disorder (11th ed.). https://icd.who.int/browse11/l-m/en#/http://id.who.int/icd/entity/1183832314
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Appendices
Appendix 1
Pandemic Grief Scale (PGS): English Version
Over the last 2 weeks, how often have you experienced the following thoughts, feelings, or behaviors related to your loss? | Not at all | Several days | More than half the days | Nearly everyday | |
---|---|---|---|---|---|
1. | I wished to die in order to be with the deceased. | 0 | 1 | 2 | 3 |
2. | I experienced confusion over my role in life or felt like my identity was diminished because of the loss. | 0 | 1 | 2 | 3 |
3. | Nothing seemed to matter much to me because of this loss. | 0 | 1 | 2 | 3 |
4. | I found it difficult to have positive memories about the deceased. | 0 | 1 | 2 | 3 |
5. | I believed that without the deceased, life was either meaningless, empty, or could not go on. | 0 | 1 | 2 | 3 |
Appendix 2
Pandemic Grief Scale (PGS): Brazilian Portuguese and Spanish Versions
Version | Brazilian Portuguese | Spanish |
---|---|---|
Instructions | Nas últimas 2 semanas, quantas vezes você experimentou os seguintes pensamentos, sentimentos, comportamentos relacionados à sua perda? | Durante las últimas 2 semanas, ¿con qué frecuencia ha experimentado los siguientes pensamientos, sentimientos o comportamientos relacionados con su pérdida? |
Item #1 | Eu queria morrer para estar com o falecido. | Quería morir para estar con la persona que falleció. |
Item #2 | Experimentei confusão sobre meu papel na vida ou senti que minha identidade foi diminuída por causa da perda. | Experimenté confusión sobre mi papel en la vida o sentí que mi identidad había cambiado debido a la pérdida. |
Item #3 | Nada parecia importar muito para mim por causa dessa perda. | Nada parecía importarme debido a esta pérdida. |
Item #4 | Achei difícil ter lembranças positivas sobre o falecido. | Me resultó difícil tener recuerdos positivos de la persona fallecida. |
Item #5 | Eu acreditava que sem o falecido a vida seria sem sentido, vazia ou não poderia continuar. | Creía que, sin la persona fallecida, la vida carecía de sentido, estaba vacía o no podía continuar. |
Appendix 3
Pandemic Grief Scale (PGS): Polish Version
Jak często w trakcie ostatnich dwóch tygodni doświadczałeś/ aś poniższych myśli, uczuć lub zachowań związanych ze stratą? | Wcale | Przez kilka dnis | Przez ponad połowę dni | Prawie codziennie lub codziennie | |
---|---|---|---|---|---|
1. | Chciałem/am umrzeć aby być z osobą, która zmarła. | 0 | 1 | 2 | 3 |
2. | Byłem/am zdezorientowany/a i miałem/am poczucie rozpadu mojej tożsamości z powodu straty bliskiej osoby. | 0 | 1 | 2 | 3 |
3. | Z powodu straty bliskiej osoby nic nie miało dla mnie większego znaczenia. | 0 | 1 | 2 | 3 |
4. | Trudno mi było mieć wspomnienia o osobie, która zmarła. | 0 | 1 | 2 | 3 |
5. | Moje życie po śmierci bliskiej osoby straciło sens, stało się puste i nie może toczyć się dalej. | 0 | 1 | 2 | 3 |
Appendix 4
Pandemic Grief Scale (PGS): Turkish version
Son 2 hafta boyunca kaybınızla ilişkili aşağıdaki düşünce, duygu veya davranışları ne sıklıkta yaşadınız? | Hiç | Birkaç gün | Günlerin yarısından fazlası | Neredeyse her gün | |
---|---|---|---|---|---|
1. | Ölenle birlikte olmak için ölmeyi diledim. | 0 | 1 | 2 | 3 |
2. | Kaybım nedeniyle hayattaki rolümle ilgili kafa karışıklığı yaşadım veya benliğimi kaybettiğimi hissettim. | 0 | 1 | 2 | 3 |
3. | Bu kayıp yüzünden hiçbir şey bana çok önemli görünmedi. | 0 | 1 | 2 | 3 |
4. | Ölen hakkında olumlu anılar bulmakta zorlandım. | 0 | 1 | 2 | 3 |
5. | Ölen olmadan hayatın ya anlamsız, boş olduğuna ya da devam edemeyeceğine inandım. | 0 | 1 | 2 | 3 |
Rights and permissions
Copyright information
© 2023 Springer Nature Switzerland AG
About this entry
Cite this entry
Lee, S.A., Neimeyer, R.A. (2023). Pandemic Grief Scale (PGS): A Clinical Screening Tool. In: Krägeloh, C.U., Alyami, M., Medvedev, O.N. (eds) International Handbook of Behavioral Health Assessment. Springer, Cham. https://doi.org/10.1007/978-3-030-89738-3_11-2
Download citation
DOI: https://doi.org/10.1007/978-3-030-89738-3_11-2
Received:
Accepted:
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-030-89738-3
Online ISBN: 978-3-030-89738-3
eBook Packages: Springer Reference Behavioral Science and PsychologyReference Module Humanities and Social SciencesReference Module Business, Economics and Social Sciences
Publish with us
Chapter history
-
Latest
Pandemic Grief Scale (PGS): A Clinical Screening Tool- Published:
- 09 February 2023
DOI: https://doi.org/10.1007/978-3-030-89738-3_11-2
-
Original
Pandemic Grief Scale (PGS): A Clinical Screening Tool- Published:
- 08 December 2022
DOI: https://doi.org/10.1007/978-3-030-89738-3_11-1