Skip to main content

From Acute Infection to Chronic Health Condition: The Role of the Social Sciences on the HIV/AIDS Global Epidemic

  • Living reference work entry
  • Latest version View entry history
  • First Online:
Handbook of Social Sciences and Global Public Health

Abstract

To date, human immunodeficiency virus (HIV) infections remain a global public health issue. While there remains no cure, recent biomedical advances have turned HIV from an acute infection into a manageable, chronic health condition. This transformation has enabled people living with HIV (PLHIV) to lead long, healthy lives. Pivotal to this transformation was the role of the social sciences. The social sciences discipline has generated valuable insights into the behavioral, social, cultural, and political factors that impact the development and implementation of HIV programs and interventions. This chapter will explicate the interpretative and critical role of the social sciences in understanding HIV/AIDS and the ways in which the social sciences will continue to impact this global epidemic. The chapter will begin with a short history of HIV/AIDS and its current global trajectory since it was first detected in the 1980s. Subsequent discussions will center around the issues arising from the biomedicalization of HIV/AIDS and illustrate the ways in which the social sciences have deepened the impact of HIV/AIDS work. These will include how the social sciences have shed light on the facilitators and barriers of HIV prevention, uncovered insights into the lived experiences of PLHIV and HIV care, and interrogated the structural impediments and sociopolitical discourses that influence the local and global ideologies for this chronic health condition. The chapter will close with the authors’ reflections regarding the ways in which the social sciences can continue to value-add to HIV/AIDS work in the future.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Institutional subscriptions

Similar content being viewed by others

References

  • Abdool Karim Q (2013) The global HIV epidemic: current status and challenges. Curr HIV/AIDS Rep 10:111–112

    Google Scholar 

  • Airhihenbuwa CO, Ford CL, Iwelunmor JI (2014) Why culture matters in health interventions: lessons from HIV/AIDS stigma and NCDs. Health Educ Behav 41:78–84. https://doi.org/10.1177/1090198113487199

    Article  PubMed  Google Scholar 

  • Altice F, Evuarherhe O, Shina S et al (2019) Adherence to HIV treatment regimens: systematic literature review and meta-analysis. Patient Prefer Adherence 13:475. https://doi.org/10.2147/PPA.S192735

  • Atuk T (2020) Pathopolitics: pathologies and biopolitics of PrEP. Front Sociol 5. https://doi.org/10.3389/fsoc.2020.00053

  • Auerbach JD, Hoppe TA (2015) Beyond “‘getting drugs into bodies’”: social science perspectives on pre-exposure prophylaxis for HIV. J Int AIDS Soc 18:1–5

    Google Scholar 

  • Barré-Sinoussi F, Abdool Karim SS, Albert J et al (2018) Expert consensus statement on the science of HIV in the context of criminal law. J Int AIDS Soc 5:e473–e473. https://doi.org/10.1002/jia2.25161

    Article  Google Scholar 

  • Baumgartner LM, Niemi E (2013) The perceived effect of HIV/AIDS on other identities. Qual Rep 18:1–23

    Google Scholar 

  • Braun V (2013) “Proper sex without annoying things”: anti-condom discourse and the “nature” of (hetero)sex. Sexualities 16:361–382. https://doi.org/10.1177/1363460713479752

    Article  Google Scholar 

  • Bury M (1982) Chronic illness as biographical disruption. Soc Health Illn 4:167–182

    Google Scholar 

  • Cáceres CF, O’Reilly KR, Mayer KH, Baggaley R (2015) PrEP implementation: moving from trials to policy and practice. J Int AIDS Soc 18:1–4. https://doi.org/10.7448/IAS.18.4.20222

    Article  Google Scholar 

  • Calabrese SK, Underhill K (2015) How stigma surrounding the use of HIV preexposure prophylaxis undermines prevention and pleasure: A call to destigmatize “truvada whores”. Am J Public Health 105:1960–1964

    Google Scholar 

  • Cameron E (2021) Forty years of AIDS: equality remains central to quelling a still-potent epidemic. In: UNAIDS Criminalisation of HIV Transmission. https://www.unaids.org/en/keywords/criminalization-hiv-transmission. Accessed 30 June 2022

  • Campbell CK (2021) Structural and intersectional biographical disruption: the case of HIV disclosure among a sample of black gay and bisexual men. Soc Sci Med 280:114046. https://doi.org/10.1016/j.socscimed.2021.114046

    Article  PubMed  Google Scholar 

  • Castro A (2005) Adherence to antiretroviral therapy: merging the clinical and social course of AIDS. PLoS Med 2:e338. https://doi.org/10.1371/journal.pmed.0020338

  • Charmaz K (1995) The body, identity, and self: adapting to impairment. Sociol Q 36:657–680. https://www.jstor.org/stable/4121346

  • Clarke AE, Shim JK, Mamo L et al (2003) Biomedicalization: Technoscientific transformations of health, illness, and U.S. biomedicine. Am Sociol Rev 68:161–194. https://doi.org/10.2307/1519765

  • Cormier McSwiggin C (2017) Moral adherence: HIV treatment, undetectability, and stigmatized viral loads among Haitians in South Florida. Med Anthropol 36:714–728. https://doi.org/10.1080/01459740.2017.1361946

    Article  PubMed  Google Scholar 

  • Crawford AM (1996) Stigma associated with AIDS: a meta-analysis. J Appl Soc Psychol 26:398–416

    Google Scholar 

  • Dilmitis S, Edwards O, Hull B et al (2012) Language, identity and HIV: why do we keep talking about the responsible and responsive use of language? Language matters. J Int AIDS Soc 15:17990. https://doi.org/10.7448/IAS.15.4.17990

    Article  PubMed Central  Google Scholar 

  • Farmer P (2004) An anthropology of structural violence. Curr Anthropol 45:305–325. https://doi.org/10.1086/382250

    Article  Google Scholar 

  • Ford N, Vitoria M, Hirnschall G, Doherty M (2013) Getting to zero HIV deaths: progress, challenges and ways forward. J Int AIDS Soc 16:18927

    Google Scholar 

  • Goffman E (2009) Stigma: notes on the management of spoiled identity. Simon and Schuster, New York

    Google Scholar 

  • Herrick C, Bell K (2022) Concepts, disciplines and politics: on ‘structural violence’ and the ‘social determinants of health’. Critical Public Health 32:295–308. https://doi.org/10.1080/09581596.2020.1810637

  • Hlabangane N (2014) From object to subject: deconstructing anthropology and HIV/AIDS in South Africa. Crit Anthropol 34:174–203. https://doi.org/10.1177/0308275X13519274

    Article  Google Scholar 

  • Ho LP, Goh ECL (2017) How HIV patients construct liveable identities in a shame based culture: the case of Singapore. Int J Qual Stud Health Well-being 12:1–14

    Google Scholar 

  • Ho LPP, Goh ECL (2020) “I have HIV but I’m not the HIV”–the experiences of heterosexual Chinese men living with HIV in Singapore. AIDS Care 32:296–301

    Google Scholar 

  • Ho D, Tan R, Yang D (2021) Do HIV non-disclosure Laws in Singapore still make sense today? Rice Media Company. https://www.ricemedia.co/hiv-non-disclosure-laws-in-singapore. Accessed 30 June 2022

  • Holt M, Stephenson N (2006) Living with HIV and negotiating psychological discourse. Health (London) 10:211–231. https://doi.org/10.1177/1363459306061789

    Article  PubMed  Google Scholar 

  • Hoots BE, Finlayson TJ, Wejnert C et al (2015) Early linkage to HIV care and antiretroviral treatment among men who have sex with men—20 cities, United States, 2008 and 2011. PLoS One 10:e0132962

    Google Scholar 

  • Imrie J, Elford J, Kippax S, Hart GJ (2007) Biomedical HIV prevention-and social science. Lancet 370:10–11

    Google Scholar 

  • Jones L, Collins L (2020) PrEP in the press: a corpus-assisted discourse analysis of how users of HIV-prevention treatment are represented in British newspapers. J Lang Sex 9:202–225. https://doi.org/10.1075/jls.20002.jon

  • Kippax S (2012) Effective HIV prevention: the indispensable role of social science. J Int AIDS Soc 15:17357

    Google Scholar 

  • Kippax S, Stephenson N (2012) Beyond the distinction between biomedical and social dimensions of HIV prevention through the lens of a social public health. Am J Public Health 102:789–799

    Google Scholar 

  • Kippax S, Stephenson N, Parker RG, Aggleton P (2013) Between individual agency and structure in HIV prevention: understanding the middle ground of social practice. Am J Public Health 103:1367–1375

    Google Scholar 

  • Levy ME, Wilton L, Phillips G et al (2014) Understanding structural barriers to accessing HIV testing and prevention services among black men who have sex with men (BMSM) in the United States. AIDS Behav 18:972–996

    Google Scholar 

  • Liamputtong P, Haritavorn N, Kiatying-Angsulee N (2012) Living positively: the experiences of thai women living with HIV/AIDS in Central Thailand. Qual Health Res 22:441–451

    Google Scholar 

  • Liamputtong P, Haritavorn N, Kiatying-Angsulee N (2015) Local discourse on antiretrovirals and the lived experience of women living with HIV/AIDS in Thailand. Qual Health Res 25:253–263

    Google Scholar 

  • Lubkin IM, Larsen PD (2006) Chronic illness: impact and interventions. Jones & Bartlett Learning

    Google Scholar 

  • Lupton D (1994) The condom in the age of AIDS: newly respectable or still a dirty word? A discourse analysis. Qual Health Res 4:304–320

    Google Scholar 

  • Ma Q, Tso LS, Rich ZC et al (2016) Barriers and facilitators of interventions for improving antiretroviral therapy adherence: a systematic review of global qualitative evidence. J Int AIDS Soc 19:1–13

    Google Scholar 

  • Mak WWS, Mo PKH, Cheung RYM et al (2006) Comparative stigma of HIV/AIDS, SARS, and tuberculosis in Hong Kong. Soc Sci Med 63:1912–1922

    Google Scholar 

  • Mattes D (2014) Caught in transition: the struggle to live a ‘normal’ life with HIV in Tanzania. Med Anthropol 33:270–287

    Google Scholar 

  • McCall B (2018) Scientific evidence against HIV criminalisation. World report. The Lancet 392:543–544

    Google Scholar 

  • McClelland A, French M, Mykhalovskiy E et al (2017) The harms of HIV criminalization: Responding to the “association of HIV diagnosis rates and laws criminalizing HIV exposure in the United States”. AIDS 31:1899–1900

    Google Scholar 

  • Moyer E, Hardon A (2014) A disease unlike any other? Why HIV remains exceptional in the age of treatment. Med Anthropol 33:263–269

    Google Scholar 

  • Mykhalovskiy E, Frohlich KL, Poland B et al (2019) Critical social science with public health: Agonism, critique and engagement. Crit Public Health 29:522–533

    Google Scholar 

  • Nydegger LA, Dickson-Gomez J, Ko TK (2021) Structural and syndemic barriers to PrEP adoption among black women at high risk for HIV: a qualitative exploration. Cult Health Sex 23:659–673. https://doi.org/10.1080/13691058.2020.1720297

    Article  PubMed  Google Scholar 

  • Nyatsanza T, Wood L (2017) Problematizing official narratives of HIV and AIDS education in Scotland and Zimbabwe. SAHARA J Soc Aspects HIV/AIDS 14:185–192. https://doi.org/10.1080/17290376.2017.1394908

  • Persson A (2013) Non/infectious corporealities: Tensions in the biomedical era of “HIV normalisation”. Sociol Health Illn 35:1065–1079. https://doi.org/10.1111/1467-9566.12023

  • Persson A, Race K, Wakeford E (2003) HIV health in context: negotiating medical technology and lived experience. Health 7:397–415

    Google Scholar 

  • Persson A, Newman CE, Hopwood M et al (2014) No ordinary mainstream illness: how HIV doctors perceive the virus. Qual Health Res 24:6–17. https://doi.org/10.1177/1049732313514139

  • Pett W (2018) Travel restrictions for people with HIV. AIDS Map. https://www.aidsmap.com/about-hiv/travel-restrictions-people-hiv. Accessed on 30 June 2022

  • Pfeiffer J, Nichter M (2008) What can critical medical anthropology contribute to global health?: a health systems perspective. Med Anthropol Q 22:410–415. https://doi.org/10.1111/j.1548-1387.2008.00041.x

    Article  PubMed  Google Scholar 

  • Rhodes T, Singer M, Bourgois P et al (2005) The social structural production of HIV risk among injecting drug users. Soc Sci Med 61:1026–1044

    Google Scholar 

  • Richardson FC, Fowers BJ (1998) Interpretive social science: an overview. Am Behav Sci 41:465–495

    Google Scholar 

  • Russell S, Seeley J, Ezati E et al (2007) Coming back from the dead: living with HIV as a chronic condition in rural Africa. Health Policy Plan 22:344–347

    Google Scholar 

  • Rzeszutek M, Gruszczyńska E, Pięta M, Malinowska P (2021) HIV/AIDS stigma and psychological Well-being after 40 years of HIV/AIDS: a systematic review and meta-analysis. Eur J Psychotraumatol 12:1–24. https://doi.org/10.1080/20008198.2021.1990527

    Article  Google Scholar 

  • Schoepf BG (2001) International AIDS research in anthropology: taking a critical perspective on the crisis. Annu Rev Anthropol 30:335–361

    Google Scholar 

  • Schofield T (2007) Health inequity and its social determinants: a sociological commentary. Health Sociol Rev 16:105–114. https://doi.org/10.5172/hesr.2007.16.2.105

    Article  Google Scholar 

  • Seale C (2008) Mapping the field of medical sociology: a comparative analysis of journals. Soc Health Illn 30:677–695

    Google Scholar 

  • Siegel K, Lekas H-M (2002) AIDS as a chronic illness: psychosocial implications. AIDS 16:S69–S76

    Google Scholar 

  • Siu GE, Seeley J, Wight D (2014) ‘Dented’and’resuscitated’masculinities: the impact of HIV diagnosis and/or enrolment on antiretroviral treatment on masculine identities in rural eastern Uganda. SAHARA: J Soc Aspects HIV/AIDS Res 11:211–221

    Google Scholar 

  • Smith JH, Whiteside A (2010) The history of AIDS exceptionalism. J Int AIDS Soc 13:47

    Google Scholar 

  • Smith AKJ, Haire B, Newman CE, Holt M (2021) Challenges of providing HIV pre-exposure prophylaxis across Australian clinics: qualitative insights of clinicians. Sex Health 18:187–194. https://doi.org/10.1071/SH20208

    Article  PubMed  Google Scholar 

  • Smith AKJ, Newman CE, Haire B, Holt M (2022) Prescribing as affective clinical practice: transformations in sexual health consultations through HIV pre-exposure prophylaxis. Soc Health Illn 44:1–19

    Google Scholar 

  • Snow DA, Anderson L (1987) Identity work among the homeless: the verbal construction and avowal of personal identities. Am J Sociol 92:1336–1371

    Google Scholar 

  • Stevens DR, Vrana CJ, Dlin RE, Korte JE (2018) A global review of HIV self-testing: themes and implications. AIDS Behav 22:497–512

    Google Scholar 

  • Tan RKJ, Kaur N, Kumar PA et al (2020) Clinics as spaces of costly disclosure: HIV/STI testing and anticipated stigma among gay, bisexual and queer men. Cult Health Sex 22:307–320. https://doi.org/10.1080/13691058.2019.1596313

  • Tan RKJ, Lim JM, Chan JKW (2021a) Is “undetectable= Untransmissible” good public health messaging? AMA J Ethics 23:418–422

    Google Scholar 

  • Tan Y-R, Kaur N, Ye AJ et al (2021b) Perceptions of an HIV self-testing intervention and its potential role in addressing the barriers to HIV testing among at-risk heterosexual men: a qualitative analysis. Sex Transm Infect 97:514–520

    Google Scholar 

  • The Lancet HIV (2018) HIV criminalisation is bad policy based on bad science. Lancet HIV 5:e473

    Google Scholar 

  • The Lancet HIV (2021) Time to end discriminatory laws against people with HIV. Lancet HIV, vol 8, p e729

    Google Scholar 

  • Thoits PA (1986) Multiple identities: examining gender and marital status differences in distress. Am Sociol Rev 51:259–272

    Google Scholar 

  • Treichler PA (1987) AIDS, homophobia and biomedical discourse: an epidemic of signification. Cult Stud 1:263–305

    Google Scholar 

  • UNAIDS (2020) UNAIDS data 2020. UNAIDS Publications. https://www.unaids.org/en/resources/documents/2020/unaids-data. Accessed on 30 June 2022

  • UNAIDS (2021) HIV criminalization – human rights fact sheet series 2021. UNAIDS Publications. https://www.unaids.org/en/resources/documents/2021/01-hiv-human-rights-factsheet-criminalization#:~:text=The%202021%2D2026%20Global%20AIDS,inequalities%20and%20ultimately%20ending%20AIDS. Accessed 30 June 2022

    Google Scholar 

  • Vaughan E, Power M (2021) The discursive construction of HIV stigma in Irish print media. Health (United Kingdom). https://doi.org/10.1177/13634593211038525

  • Walker L (2019) ‘There’s no pill to help you deal with the guilt and shame’: contemporary experiences of HIV in the United Kingdom. Health 23:97–113

    Google Scholar 

  • Webb R (2020) HIV criminalisation Laws around the world. AIDS Map. https://www.aidsmap.com/about-hiv/hiv-criminalisation-laws-around-world. Accessed 30 June 2022

  • World Health Organisation (2021a) HIV/AIDS – key facts. Fact sheets regarding HIV/AIDS. https://www.who.int/news-room/fact-sheets/detail/hiv-aids. Accessed 30 June 2022

    Google Scholar 

  • World Health Organisation (2021b) Key facts and latest estimates on the global HIV epidemic – 2020. HIV Data and Statistics. https://www.who.int/teams/global-hiv-hepatitis-and-stis-programmes/hiv/strategic-information/hiv-data-and-statistics. Accessed 30 June 2022

    Google Scholar 

  • Zissette S, Watt MH, Prose NS et al (2016) “If you don’t take a stand for your life, who will help you?”: Men’s engagement in HIV care in Kwazulu-Natal, South Africa. Psychol Men Masculinity 17:265

    Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Muhamad Alif Bin Ibrahim .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2023 Springer Nature Switzerland AG

About this entry

Check for updates. Verify currency and authenticity via CrossMark

Cite this entry

Bin Ibrahim, M.A., Ho, L.P. (2023). From Acute Infection to Chronic Health Condition: The Role of the Social Sciences on the HIV/AIDS Global Epidemic. In: Liamputtong, P. (eds) Handbook of Social Sciences and Global Public Health. Springer, Cham. https://doi.org/10.1007/978-3-030-96778-9_88-2

Download citation

  • DOI: https://doi.org/10.1007/978-3-030-96778-9_88-2

  • Received:

  • Accepted:

  • Published:

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-030-96778-9

  • Online ISBN: 978-3-030-96778-9

  • eBook Packages: Springer Reference Social SciencesReference Module Humanities and Social SciencesReference Module Business, Economics and Social Sciences

Publish with us

Policies and ethics

Chapter history

  1. Latest

    From Acute Infection to Chronic Health Condition: The Role of the Social Sciences on the HIV/AIDS Global Epidemic
    Published:
    25 March 2023

    DOI: https://doi.org/10.1007/978-3-030-96778-9_88-2

  2. Original

    From Acute Infection to Chronic Health Condition: The Role of the Social Sciences on the HIV/AIDS Global Epidemic
    Published:
    16 February 2023

    DOI: https://doi.org/10.1007/978-3-030-96778-9_88-1