Abstract
The syndrome of the chronically, critically ill patient is emerging as life-sustaining technologies advance healthcare delivery. The occurrence of such syndrome may include long-stay pediatric cardiac intensive care unit patients, patients on ventricular assist devices as a bridge to transplant or destination therapy, complicated heart failure patients requiring home milrinone infusions, or the advanced technologies used to support pulmonary hypertension patients in the hospital and at home. This section will describe the syndrome of the chronically, critically ill patients and their complex, interdisciplinary care needs.
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References
Human DG (2009) Living with complex heart disease. Pediatr Child Health 14:161–166
Hickman RL, Douglas PA (2010) Impact of chronic critical illness on psychological outcomes of family members. AACN Adv Crit Care 21(1):80–91
Lily C, De Meo D, Sonna L et al (2000) An intensive communication intervention for the critically ill. Am J Med 109:469–475
Lee D, Higgins PA (2010) Adjunctive therapies for the chronically, critically ill. AACN Adv Crit Care 21(1):92–106
Hollander SA, Addonizio LJ, Chin C et al (2013) Abdominal complaints as a common first presentation of heart failure in adolescents with dilated cardiomyopathy. Am J Emerg Med Aug 31(8):825–830
Berg A, Snell L, Mahle W (2007) Home inotropic therapy in children. J Heart Lung Transplant 26(5):453–457
Goldman AP, Cassidy J, De Leval M, Haynes S, Brown K, Whitmore P, Cohen G, Tsang V, Elliott M, Davidson A, Hamilton L, Bolton D, Wray J, Hasan A, RadleySmith R, Macrae D, Smith J (2003) The waiting game: bridging to heart transplantation. Lancet 362(9400):1967–1970
Berlin Heart (2011) Excor pediatric update, June 2011, Berlin Heart
Great Ormond Street Hospital NHS Trust (2008) Berlin HEART database. (Internal database)
Long J, Kfoury A, Slaughter M, Silver M, Milano C, Rogers J, Delgado R, Frazier O (2005) Long-term destination therapy with the heart mate XVE left ventricular assist device: improved outcomes since the REMATCH study. Congest Heart Fail 11(3):133–138
Davidson JE (2009) Family centred care; meeting the need of patients’ families and helping families adapt to critical illness. Crit Care Nurse 29(3):28–34
Great Ormond Street Hospital NHS Trust, Berlin Heart Mechanical Heart Assist – Information for families (2009). http://www.gosh.nhs.uk/gosh_families/information_sheets/berlin_heart/berlin_heart_families.pdf. (Last viewed 20 Nov 2011)
RCN (2011) Children’s and young people’s cardiac nursing: RCN guidance on roles, career pathways and competence development. http://www.rcn.org.uk/__data/assets/pdf_file/0006/393513/004121.pdf. (Last viewed 7 Aug 2011)
Staveski SL, Avery S, Rosenthal D, Roth SJ, Wright GE (2011) Implementation of a comprehensive interdisciplinary care coordination of infants and young children on Berlin Heart ventricular assist devices. J Cardiovasc Nurs 26(3):231–238
Li HCW, Lopez V (2008) Effectiveness and appropriateness of therapeutic play intervention in preparing children for surgery: a randomized controlled trial study. J Spec Pediatr Nurs 13(2):63–73
Great Ormond Street Hospital NHS Trust (2010) Anticoagulation for Berlin Heart Excor. (Internal protocol)
MacQueen S (2005) The special needs of children receiving intravenous therapy. Nurs Times 101(8):59
Yung D, Widlitz AC, Rosenzweig EB et al (2004) Outcomes in children with idiopathic pulmonary arterial hypertension. Circulation 110:660–665
Siehr SL, Ivy DD, Miller-Reed K et al (2013) Children with pulmonary arterial hypertension and prostanoid therapy: long-term hemodynamics. J Heart Lung Transplant 32:546–552
Zijlstra WMH, Douwes JM, Rosenzweig EB et al (2014) Survival differences in pediatric pulmonary arterial hypertension: clues to better understanding of outcome and optimal treatment strategies. J Am Coll Cardiol 63:2159–2169
Ogawa M, Albrecht D, Liu E (2009) Medical and non-medical considerations for the outpatient management of children with pulmonary arterial hypertension. Prog Pediatr Cardiol 27:57–61
Kallen AJ, Lederman E, Balaji A et al (2008) Bloodstream infections in patients given treatment with intravenous prostanoids. Infect Control Hosp Epidemiol 29:342–349
Center for Disease Control (2007) Bloodstream infections among patients treated with intravenous epoprostenol or intravenous treprostinil for pulmonary arterial hypertension – seven sites, United States, 2003–2006. Morb Mortal Wkly Rep 56:170–172
Ivy DD, Calderbank M, Wagner B et al (2009) Closed-hub systems with protected connections and the reduction of risk of catheter-related bloodstream infection in pediatric patients receiving intravenous prostanoid therapy for pulmonary hypertension. Infect Control Hosp Epidemiol 30:823–829
Abman SA, Hansmann G, Archer SL et al (2015) Pediatric Pulmonary Hypertension. Guidelines from the American Heart Association and American Thoracic Society. Circulation 132:2037–2099
McLaughlin VV, Archer S, Badesch DB et al (2009) ACCF/AHA expert consensus document on pulmonary arterial hypertension: a report of the American College of cardiology foundation task force on expert consensus documents and the American heart association developed in collaboration with the American College of chest physicians; American Thoracic Society, Inc; and the Pulmonary Hypertension Association. J Am Coll Cardiol 53:1573–1619
Galie N, Humbert M, Vachiery JL et al (2016) ESC/ERS Guidelines for the diagnosis and treatment of pulmonary hypertension. Eur Heart J 37:67–119
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Staveski, S., Price, E., Liu, E., Smith, E., Murray, J., Ogawa, M. (2020). Chronically Critically Ill Pediatric Cardiac Patient: Nursing Considerations. In: da Cruz, E.M., Ivy, D., Hraska, V., Jaggers, J. (eds) Pediatric and Congenital Cardiology, Cardiac Surgery and Intensive Care. Springer, London. https://doi.org/10.1007/978-1-4471-4999-6_85-2
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DOI: https://doi.org/10.1007/978-1-4471-4999-6_85-2
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