Abstract
Increased longevity and the development of sophisticated healthcare technologies and treatments mean that many people now live with chronic health conditions such as cardiovascular disease over extended periods of their lives. In this context, health-related quality of life (HRQoL) has become an important endpoint in evaluations of health interventions. Its use reflects an increasingly biopsychosocial perspective in modern healthcare. HRQoL research first developed in cancer settings where the balance of quality and duration of life became a key concern in decisions to use novel treatments with very serious side-effects and only partial efficacy. However, over the past 20 years there has been a burgeoning of research activity in every major chronic illness category. In cancer, the European Organisation for Research on the Treatment of Cancer (EORTC) has been established by interested professionals.1
Access provided by Autonomous University of Puebla. Download to read the full chapter text
Chapter PDF
Similar content being viewed by others
Keywords
- Heart Failure Patient
- Cardiac Rehabilitation
- Cardiac Patient
- Percutaneous Coronary Intervention
- HRQoL Instrument
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.
References
Sprangers MA, Cull A, Groenvold M, Bjordal K, Blazeby J, Aaronson NK. The European Organization for Research and Treatment of Cancer approach to developing questionnaire modules: an update and overview. EORTC Quality of Life Study Group. Qual Life Res 1998;7:291–300.
Brooks P, Hochberg M. Outcome measures and classification criteria for the rheumatic diseases. A compilation of data from OMERACT (Outcome Measures for Arthritis Clinical Trials), ILAR (International League of Associations for Rheumatology), regional leagues and other groups. Rheumatology 2001;40:896–906.
Patrick DL, Erickson P. Health Status and Health Policy. Quality of Life in Health Care Evaluation and Resource Allocation. New York: Oxford University Press; 1993.
Garratt A, Schmidt L, Mackintosh A, Fitzpatrick R. Quality of life measurement: bibliographic study of patient assessed health outcome measures. British Medical Journal 2002;324:1417–1421.
Ware JE Jr, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care 1992;30:473–483.
Hunt S, McEwan J, McKenna S. Measuring health status: a new tool for clinicians and epidemiologists. J R Coll Gen Pract 1985;35:185–188.
Spertus JA, Winder JA, Dewhurst TA, et al. Development and evaluation of the Seattle Angina Questionnaire: A new functional status measure for coronary artery disease. J Am Coll Cardiol 1995;25:333–341.
Oldridge N, Guyatt G, Jones N, et al. Effects on quality of life with comprehensive rehabilitation after acute myocardial infarction. Am J Cardiol 1991;67:1084–1089.
Valenti L, Lim L, Heller RF, Knapp J. An improved questionnaire for assessing quality of life after myocardial infarction. Qual Life Res 1996;5:151–161.
Rector TS, Kubo SH, Cohn JN. Patients’ self-assessment of their congestive heart failure: Content, reliability, and validity of a new measure, the Minnesota Living with Heart Failure questionnaire. Heart Failure 1987;3:198–209.
Hare D, Davis C. Cardiac Depression Scale: validation of a new depression scale for cardiac patients. J Psychosom Res 1996;40:379–386.
Denollet J. Emotional distress and fatigue in coronary heart disease: the Global Mood Scale (GMS). Psychol Med 1993;23:111–121.
Erdman R, Duivenvoorden H, Verhage F, Krazemier M, Hugenholtz P. Predictability of beneficial effects in cardiac rehabilitation: a randomised clinical trial of psychosocial variables. J Cardiopulm Rehabil 1996;6:206–213.
Zigmond A, Snaith R. The Hospital Anxiety and Depression Scale. Acta Psychiatr Scand 1983;67:361–370.
Hermann C. International experiences with the Hospital Anxiety and Depression scale — a review of validation data and clinical results. J Psychosom Res 1997;42:17–41.
McGee HM, O’Boyle CA, Hickey AM, Joyce CRB, O’Malley K. Assessing the quality of life of the individual the SEIQoL with a healthy and a gastroenterology unit population. Psychol Med 1991;21:749–759.
Hickey AM, Bury G, O’Boyle CA, Bradley F, O’Kelly FD, Shannon W. A new short-form individual quality of life measure (SEIQoL-DW): application in a cohort of individuals with HIV/AIDS. BMJ 1996;313:29–33.
Ferrans CE, Powers MJ. Quality of life index: development and psychometric properties. Adv Nurs Sci 1985;8:15–24.
Brooks R and the EuroQoL Group. EuroQoL: the current state of play. Health Policy 1996;37:53–72.
Kaplan RM, Anderson JP, Ganaits TG. The Quality of Well-being Scale: rationale for a single quality of life index. In: Walker SR, Rosser RM, eds. Quality of Life Assessment: Key Issues in the 1990s. Dordrecht: Kluwer Academic; 1993.
Charlton JR, Patrick DL, Peach H. Use of multivariate measures of disability in health surveys. J Epidemiol Community Health 1993;37:296–304.
Stewart AL, Greenfield S, Hays RD, et al. Functional status and well-being of patients with chronic conditions: results from the Medical Outcomes Study. JAMA 1989;262:907–913.
Bowling A. Measuring Disease. Buckingham: Open University Press; 2001.
The Patient-Reported Outcomes and Quality of Life Outcomes Instruments (PROQOLID) database (www.proqolid.org).
Joyce CRB, O’Boyle CA, McGee HM. Individual Quality of Life: Approaches to Conceptualisation and Assessment. Amsterdam: Harwood; 1999.
Smith HJ, Taylor R, Mitchell A. A comparison of four quality of life instruments in cardiac patients: SF-36, QLI, QLMI, and SEIQoL. Heart 2000;84:390–394.
Dempster M, Donnelly M. Measuring the health related quality of life of people with ischaemic heart disease. Heart 2000;83:641–644.
Moons P, Van Deyk K, Marquet K, et al. Individual quality of life in adults with congenital heart disease: a paradigm shift. Eur Heart J 2005;26:298–307.
Papadantonaki A, Stotts NA, Paul SM. Comparison of quality of life before and after coronary artery bypass surgery and percutaneous transluminal angioplasty. Heart Lung 1994;23:45–52.
Deshotels A, Planchock N, Dech Z, Prevost S. Gender differences in perceptions of quality of life in cardiac rehabilitation patients. J Cardiopulm Rehabil 1995;15:143–148.
Carroll DL, Hamilton GA, McGovern BA. Changes in health status and quality of life and the impact of uncertainty in patients who survive life-threatening arrhythmias. Heart Lung 1999;28:251–260.
Calvert MJ, Freemantle N, Cleland J. The impact of chronic heart failure on helath-0realted quality of life data acquired in the baseline phase of the CARE-HF study. Eur J Heart Failure 2005;7:243–251.
Kim J, Henderson RA, Pocock SJ, et al. Health-related quality of life after interventional or conservative strategy in patients with unstable angina or non-ST-segment elevation myocardial infarction. J Am Coll Cardiol 2005;45:221–228.
Morgan K, McGee H, Shelley E. Quality of life assessment in heart failure interventions: a systematic review. (submitted for publication).
Gandjour A, Lauterbach KW. Review of quality-of-life evaluations in patients with angina pectoris. Pharmacoeconomics 1999;16:141–152.
Wilson A, Wiklund I, Lahti T, Wahl M. A summary index for the assessment of quality of life in angina pectoris. J Clin Epidemiol 1991;44:981–988.
Dougherty CM, Dewhurst T, Nichol WP, Spertus J. Comparison of three quality of life instruments in stable angina pectoris: Seattle Angina Questionnaire, Short Form Health Survey (SF-36), and Quality of Life Index-Cardiac Version III. J Clin Epidemiol 1998;51:569–575.
Spertus JA, Dewhurst T, Dougherty CM, Nichol P. Testing the effectiveness of converting patients to long-acting antianginal medications: The Quality of Life in Angina Research Trial (QUART). Am Heart J 2001;141:550–558.
Moore RK, Groves D, Bateson S, et al. Health-related quality of life of patients with refractory angina before and one year after enrolment onto a refractory angina program. Eur J Pain 2005;9:305–310.
Chen AY, Daley J, Thibault GE. Angina patients’ ratings of current health and health without angina. Med Decis Making 1996;16:169–177.
Simpson E, Pilote L. Quality of life after acute myocardial infarction: a systematic review. Can J Cardiol 2003;19:507–511.
Taylor R, Kirby B, Burdon D, et al. The assessment of recovery in patients after myocardial infarction using three generic quality of life measures. J Cardiopulm Rehabil 1998;18:139–144.
Brown N, Melville M, Gray D, Young T, Skene AM, Hampton JR. Comparison of the SF-36 health survey questionnaire with the Nottingham Health Profile in long-term survivors of a myocardial infarction. J Public Health Med 2000;22:167–175.
O’Brien BJ, Buxton MJ, Patterson DL. Relationship between functional status and health-related quality-of-life after myocardial infarction. Med Care 1993;31:950–955.
Hoefer S, Lim L, Guyatt G, Oldridge N. The MacNew Heart Disease health-related quality of life instrument: a summary. Health and Quality of Life Outcomes 2004;2:3.
Lim LL-Y, Johnson NA, O’Connell RL, Heller RF. Quality of life and later adverse health outcomes in patients with suspected heart attack. Aust N Z J Public Health 1998;22:540–546.
Dixon T, Lim LL, Heller RF. Quality of life: an index for identifying high-risk cardiac patients. J Clin Epidemiol 2001;54:952–960.
Lane D, Carroll D, Ring C, et al. Mortality and quality of life 12 months after myocardial infarction: effects of depression and anxiety. Psychosom Med 2001;63:221–230.
Berry C, McMurray J. A review of quality-of-life evaluations in patients with congestive heart failure. Pharmacoeconomics 1999;16:247–271.
Gorkin L, Norvell NK, Rosen RC, et al. Assessment of quality of life as observed from the baseline data of the studies of left ventricular dysfunction (SOLVD) trial quality-of-life substudy. Am J Cardiol 1993;71:1069–1073.
Martensson J, Stromberg A, Dahlstrom U, Karlsson JE, Fridlund B. Patients with heart failure in primary health care: effects of a nurse-led intervention on health-related quality of life and depression. Eur J Heart Failure 2005;7:393–403.
Wolinsky FD, Wyrwich KW, Nienaber NA, Tierney WM. Generic versus disease-specific health status measures. An example using coronary artery disease and congestive heart failure patients. Evaluation & the Health Professions 1998;21:216–243.
Green CP, Porter CB, Bresnahan DR, Spertus JA. Development and evaluation of the Kansas City Cardiomyopathy Questionnaire: a new health status measure for heart failure. J Am Coll Cardiol 2000;35:1245–1255.
Bouvy ML, Heerdink ER, Leufkens HG, Hoes AW. Predicting mortality in patients with heart failure: a pragmatic approach. Heart 2003;89:605–609.
Belardinelli R, Georgiou D, Cianci G, Purcaro A. Randomized, controlled trial of long-term moderate exercise training in chronic heart failure: effects on functional capacity, quality of life, and clinical outcome. Circulation 1999;99:1173–1182.
Benatar D, Bondmass M, Ghitelman J, Avitall B. Outcomes of chronic heart failure. Arch Intern Med 2003;163:347–352.
Soto GE, Jones P, Weintraub WS, Krumholz HM, Spertus JA. Prognostic value of health status in patients with heart failure after acute myocardial infarction. Circulation 2004;110:546–551.
Feldman PH, Murtaugh CM, Pezzin LE, McDonald MV, Peng TR. Just-in-time evidence-based e-mail “reminders” in home health care: impact on patient outcomes. Health Serv Res 2005;40:865–885.
Salisbury AC, House JA, Conard MW, Krumholz HM, Spertus JA. Low-to-moderate alcohol intake and health status in heart failure patients. J Card Failure 2005;11:323–328.
Cotrufo M, Romano GP, De Santo L, et al. Treatment of extensive ischaemic cardiomyopathy: quality of life following two different surgical strategies. Eur J Cardiothorac Surg 2005;27:481–487.
Moons P, Van Deyk K, Marquet K, et al. Individual quality of life in adults with congenital heart disease: a paradigm shift. Eur Heart J 2005;26:298–307.
Rose M, Koehler F, Sawitzky B, Fliege H, Klapp BF. Determinants of the quality of life of patients with congenital heart disease. Qual of Life Res 2005;14:35–43.
Rector TS, Ormaza SM, Kubo SH. Health status of heart transplant recipients versus patients awaiting heart transplantation: a preliminary evaluation of the SF-36 questionnaire. J Heart Lung Transplant 1993;12:983–986.
Bainger EM, Fernsler JI. Perceived quality of life before and after implantation of an internal cardioverter defibrillator. Am J Crit Care 1995;4:36–43.
Carroll DL, Hamilton GA, McGovern BA. Changes in health status and quality of life and the impact of uncertainty in patients who survive life-threatening arrhythmias. Heart Lung 1999;28:251–260.
Krumholz HM, McHorney CA, Clark L, et al. Changes in health after elective percutaneous coronary revascularisation. Med Care 1996;34:754–759.
Zhang Z, Mahoney EM, Stables RH, et al. Disease-specific health status after stent-assisted percutaneous coronary Intervention and coronary artery bypass surgery. Circulation 2003;108:1694–1700.
Pocock SJ, Henderson RA, Seed P, et al. Quality of life, employment status and anginal symptoms after coronary angioplasty or bypass surgery: 3-year follow-up in the Randomised Intervention Treatment of Angina (RITA) Trial. Circulation 1996;94:135–142.
Wahrborg P. Quality of life after coronary angioplasty or bypass surgery: 1-year follow-up in the Coronary Angioplasty versus Bypass Revascularisation Investigation (CABRI) trial. Eur Heart J 1999;20:653–658.
Sjogren J, Thulin LI. Quality of life in the very elderly after cardiac surgery: a comparison of SF-36 between long-term survivors and an age-matched population. Gerontology 2004;50:407–410.
Rumsfeld JS, MaWhinney S, McCarthy M, et al. Health-related quality of life as a predictor of mortality following coronary artery bypass graft surgery. JAMA 1999;281:1298–1303.
World Health Organization. Needs and action priorities in cardiac rehabilitation and secondary prevention in patients with coronary heart disease. Geneva: WHO Regional Office for Europe; 1993.
Dugmore LD, Tipson RJ, Phillips MH, et al. Changes in cardiovascular fitness, psychological well-being, quality of life and vocational status following a 12-month cardiac exercise rehabilitation programme. Heart 1999;81:359–366.
Pasquali S, Alexander K, Coombs L, Lytle B, Peterson E. Effects of cardiac rehabilitation on functional outcomes after coronary revascularisation. Am Heart J 2003;145:445–451.
Koertge J, Weidner G, Elliott-Eller M, et al. Improvement in medical risk factors and quality of life in women and men with coronary artery disease in the Multicenter Lifestyle Demonstration Project. Am J Cardiol 2003;91:1316–1322.
Yu C-M, Lau C-P, Chau J, et al. A short course cardiac rehabilitation program is highly cost-effective in improving long-term quality of life in patients with recent myocardial infarction or percutaneous coronary intervention. Arch Phys Med Rehabil 2004;85:1915–1922.
Hawkes A, Nowak M, Speare R. Short form-36 survey as an evaluation tool for cardiac rehabilitation programmes: is it appropriate? J Cardiopulm Rehabil 2003;23:22–25.
Chan DSK, Chau JPC, Chang AM. Acute coronary syndromes: cardiac rehabilitation programmes and quality of life. J Adv Nurs 2005;49:591–599.
Lavie CJ. Milani RV. Benefits of cardiac rehabilitation and exercise training programs in elderly coronary patients. Am J Geriatr Cardiol 2001;10:323–327.
Pasquali SK, Alexander KP, Peterson ED. Cardiac rehabilitation in the elderly. Am Heart J 2001;142:748–55.
Brown N, Melville M, Gray D, et al. Quality of life four years after acute myocardial infarction: short form 36 scores compared with a normal population. Heart 1999;81:352–358.
Veenstra M, Pettersen KI, Rollag A, Stavern K. Association of changes in health-related quality of life in coronary heart disease with coronary procedures and sociodemographic characteristics. Health and Quality of Life Outcomes 2004;2:56.
Jolliffe JA, Rees K, Taylor RS, Thompson D, Oldridge N, Ebrahim S. Exercise-based rehabilitation for coronary heart disease. The Cochrane Database of Systematic Reviews, 2001.
McGee HM, Hevey D, Horgan JH. Psychosocial outcome assessments for use in cardiac rehabilitation service evaluation: a 10-year systematic review. Soc Sci Med 1999:48;1373–1393.
Hevey D, McGee HM, Horgan JH. Responsiveness of Health-Related Quality of Life Outcome Measures in Cardiac Rehabilitation: Comparison of cardiac rehabilitation outcome measures. J Consult Clin Psychol 2004;72:1175–1180.
McGee H, Oldridge N, Hellemans I. Quality of life evaluation in cardiovascular disease: a role for the European Society of Cardiology? Eur J Cardiovasc Prev Rehabil 2005;12:191–192.
Oldridge N, Saner H, McGee HM for the EuroCardioQoL Study Investigators. The Euro Cardio-QoL Project. An international study to develop a core heart disease health-related quality of life questionnaire, the HeartQoL. Eur J Cardiovasc Prev Rehabil 2005;12:87–94.
Author information
Authors and Affiliations
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2007 Springer-Verlag London Limited
About this chapter
Cite this chapter
McGee, H. (2007). Health-Related Quality of Life in Cardiac Patients. In: Perk, J., et al. Cardiovascular Prevention and Rehabilitation. Springer, London. https://doi.org/10.1007/978-1-84628-502-8_31
Download citation
DOI: https://doi.org/10.1007/978-1-84628-502-8_31
Publisher Name: Springer, London
Print ISBN: 978-1-84628-462-5
Online ISBN: 978-1-84628-502-8
eBook Packages: MedicineMedicine (R0)