Collection

Data sources and registries in healthcare

This collection welcomes articles describing the development or the novel application of health-related data sources and data banks, federated database systems and other data sharing initiatives, clinical registries including disease and patient registries, electronic health record systems, claims data and health administrative data. The description of data infrastructure, its application to specific settings, or novel developments to solve challenges such as medical data integration, ethical case production and generation, or synthetic data production will be considered. The focus will not be on the regulatory aspect, but the collection will consider studies presenting technical solutions to address ethical data sharing and comply with the FAIR data principles.

Editors

  • Andrew D. Boyd

    He is an Associate Professor in the Department of Biomedical and Health Information Sciences at University of Illinois Chicago. He is also the Associate Vice Chancellor for Research in Computing and Data Initiatives/Chief Research Information Officer and the Associate Chief Health Information Officer for Innovation and Research for the University of Illinois Hospital and Health Science System. He was awarded 2015 UIC Researcher of the Year in Clinical Sciences, Rising Star. He has over 80 publications (with ~ 3000 citations). He has been a PI, Co-PI, Co-I on numerous grants from numerous agencies.

Articles (9 in this collection)