Collection
Ethics, Law, and Society in Human Genomics
- Submission status
- Closed
This thematic series addresses current and emerging issues in human genomics, such as data sharing, personalized and precision medicine, and feedback of findings. The series welcomed submissions which explicitly dealt with how the issues are framed (e.g., in terms of ethical principles such as autonomy, justice and solidarity), including discussions of the possibilities and challenges of harnessing genomic research for public good.
Editors
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Professor Ruth Chadwick
University of Manchester, UK
Articles (10 in this collection)
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Tensions in ethics and policy created by National Precision Medicine Programs
Authors
- Jusaku Minari
- Kyle B. Brothers
- Michael Morrison
- Content type: Opinion article
- Open Access
- Published: 17 April 2018
- Article: 22
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The development of large-scale de-identified biomedical databases in the age of genomics—principles and challenges
Authors
- Fida K. Dankar
- Andrey Ptitsyn
- Samar K. Dankar
- Content type: Review
- Open Access
- Published: 10 April 2018
- Article: 19
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Including all voices in international data-sharing governance
Authors (first, second and last of 22)
- Jane Kaye
- Sharon F. Terry
- Anne Cambon-Thomsen
- Content type: Opinion Article
- Open Access
- Published: 07 March 2018
- Article: 13
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Attitudes of stakeholders in psychiatry towards the inclusion of children in genomic research
Authors (first, second and last of 6)
- Anna Sundby
- Merete Watt Boolsen
- Ole Mors
- Content type: Primary Research
- Open Access
- Published: 05 March 2018
- Article: 12
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APPLaUD: access for patients and participants to individual level uninterpreted genomic data
Authors (first, second and last of 12)
- Adrian Thorogood
- Jason Bobe
- on behalf of the Participant Values Task Team of the Global Alliance for Genomics and Health
- Content type: Review
- Open Access
- Published: 17 February 2018
- Article: 7
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Identify Down syndrome transcriptome associations using integrative analysis of microarray database and correlation-interaction network
Authors (first, second and last of 12)
- Min Chen
- Jiayan Wang
- Dunjin Chen
- Content type: Genome Database
- Open Access
- Published: 19 January 2018
- Article: 2
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Ethical frameworks for obtaining informed consent in tumour profiling: an evidence-based case for Singapore
Authors (first, second and last of 5)
- Yasmin Bylstra
- Tamra Lysaght
- Patrick Tan
- Content type: Primary Research
- Open Access
- Published: 08 December 2017
- Article: 31
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Precision medicine at the crossroads
Authors
- Maynard V. Olson
- Content type: Opinion Article
- Open Access
- Published: 11 October 2017
- Article: 23
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Falling giants and the rise of gene editing: ethics, private interests and the public good
Authors (first, second and last of 6)
- Benjamin Capps
- Ruth Chadwick
- Hub Zwart
- Content type: Opinion
- Open Access
- Published: 29 August 2017
- Article: 20