Abstract
In this chapter, I will start by providing a brief account of the main contributions to chronic illness, with a particular focus on the studies that explored LGBTQ+ experiences. I will then introduce crip theory as a crucial theoretical standpoint to critically explore the political meanings attached to disability, illness, and health. Finally, I will focus on time and chrononormativity as key elements of analysis for the intersections of LGBTQ+ trajectories and chronic illness. Through the contributions on chronic illness, crip studies, and time, I aim at composing a theoretical tool set that can guide the discussion of the following chapters.
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References
Abrams, T. (2016). Disability, queer phenomenology, and the politics of personhood. InterAlia. A Journal of Queer Studies, 16(a), 1–18.
Ahmed, S. (2010). The promise of happiness. Duke University Press.
Austin, E. L. (2013). Sexual orientation disclosure to health care providers among urban and non-urban Southern Lesbians. Women & Health, 53(1), 41–55.
Axtell, S. (1999). Disability and chronic illness identity interviews with lesbians and bisexual women and their partners. International Journal of Sexuality and Gender Studies, 4(1), 53–72.
Bjorkman, M., & Malterud, K. (2007). Being lesbian – Does the doctor need to know? A qualitative study about the significance of disclosure in general practice. Scandinavian Journal of Primary Health Care, 25(1), 58–62.
Boehmer, U., & Elk, R. (2015). Cancer and the LGBT community unique perspectives from risk to survivorship. Springer.
Bray, L., Kirk, S., & Callery, P. (2013). Developing biographies: The experiences of children, young people and their parents of living with a long-term condition. Sociology of Health & Illness, 36(6), 823–839.
Brown, P., Heyman, B., & Alaszewski, A. (2013). Time-framing and health risks. Health, Risk & Society, 15(6–07), 479–488.
Brownworth, V. A., & Raffo, S. (Eds.). (1999). Restricted access: Lesbians on disability. Seal; Airlift.
Brune, J. A., & Wilson, D. J. (2013). Disability and passing: Blurring the lines of identity. Temple University Press.
Bury, M. (1982). Chronic illness as biographical disruption. Sociology of Health & Illness, 4(2), 167–182.
Bury, M. (1991). The sociology of chronic illness: A review of research and prospects. Sociology of Health & Illness, 13(4), 451–468.
Bury, M. (1997). Health and illness in a changing society. Routledge.
Butler, J. (1993). Bodies that matter: On the discursive limits of “sex”. Routledge.
Campbell, F. (2009). Contours of Ableism: The production of disability and abledness. Palgrave Macmillan UK.
Carricaburu, D., & Pierret, J. (1995). From biographical disruption to biographical reinforcement: The case of HIV-positive men. Sociology of Health and Illness, 17(1), 65.
Cederström, C., & Spicer, A. (2015). Wellness syndrome. Wiley.
Cerezo, A., Ching, S., & Ramirez, A. (2021). Healthcare access and health-related cultural norms in a community sample of black and Latinx sexual minority gender expansive women. Journal of Homosexuality, 0(0), 1–24.
Ciambrone, D. (2001). Illness and other assaults on self: The relative impact of HIV/AIDS on women’s lives. Sociology of Health & Illness, 23(4), 517–540.
Clare, E. (1999). Exile and pride: Disability, queerness, and liberation. South End Press.
Clare, E. (2017). Brilliant imperfection: Grappling with cure. Duke University Press.
Courtenay-Quirk, C., Wolitski, R. J., Parsons, J. T., Gómez, C. A., & Seropositive Urban Men’s Study Team. (2006). Is HIV/AIDS stigma dividing the gay community? Perceptions of HIV-positive men who have sex with men. AIDS Education and Prevention: Official Publication of the International Society for AIDS Education, 18(1), 56–67.
Crenshaw, K. (1991). Mapping the margins: Intersectionality, identity politics, and violence against women of color. Stanford Law Review, 43(6), 1241–1299.
Crow, L. (1996). Including all of our lives: Renewing the social model of disability. In C. Barnes & G. Mercer (Eds.), Exploring the Divide (pp. 55–72). The Disability Press.
Dolezal, L., Käll, L. F., McCormack, D., Oikkonen, V., & Shildrick, M. (2021). Introduction: Queering health and biomedicine. Lambda Nordica, 26(2–3), 7–18.
Edelman, L. (2007). No future. Queer theory and the death drive. Duke University Press.
Eliason, M. J., & Schope, R. (2001). Does “Don’t Ask Don’t Tell” apply to health care? Lesbian, gay, and bisexual people’s disclosure to health care providers. Journal of the Gay and Lesbian Medical Association, 5(4), 125–134.
Ezzy, D. (2000). Illness narratives: Time, hope and HIV. Social Science & Medicine, 50(5), 605–617.
Faircloth, C. A., Boylstein, C., Rittman, M., Young, M. E., & Gubrium, J. (2004). Sudden illness and biographical flow in narratives of stroke recovery. Sociology of Health & Illness, 26(2), 242–261.
Foucault, M. (1978). The history of sexuality. Vintage Books.
Freeman, E. (2007). Introduction. GLQ: A Journal of Lesbian and Gay Studies, 13(2–3), 159–176.
Freeman, E. (2011). Time binds: Queer temporalities, queer histories. Duke University Press.
Genke, J. (2004). Resistance and resilience: The untold story of gay men aging with chronic illness. Journal of Gay & Lesbian Social Services, 17(2), 81–95.
Grinyer, A. (2007). The biographical impact of teenage and adolescent cancer. Chronic Illness, 3(4), 265–277.
Halberstam, J. (2005). In a queer time and place: Transgender bodies, subcultural bodies. New York University Press.
Halberstam, J. (2011). The queer art of failure. Duke University Press.
Hilário, A. P. (2019). (Re) making gender in the clinical context: A look at how ideologies shape the medical construction of gender dysphoria in Portugal. Social Theory & Health, 17(4), 463–480.
Horncastle, J. (2017). Practicing care: Queer vulnerability in the hospital. Social Identities, 24(3), 383–394.
Jacobs, R. J., Sklar, E. M., & Kane, M. N. (2018). Sexual behaviors and perceptions of HIV risk in a multiethnic U.S. sample of women who have sex with women. Journal of Social Service Research, 44(5), 614–623.
Kafer, A. (2013). Feminist, queer, crip. Indiana University Press.
Kim, J. B., & Schalk, S. (2021). Reclaiming the radical politics of self-care: A crip-of-color critique. South Atlantic Quarterly, 120(2), 325–342.
Larsson, A. T., & Grassman, E. J. (2012). Bodily changes among people living with physical impairments and chronic illnesses: Biographical disruption or normal illness? Sociology of Health & Illness, 34(8), 1156–1169.
Link, B. G., & Phelan, J. C. (2006). Stigma and its public health implications. The Lancet, 9509, 528.
Lipton, B. (2004). Gay men living with non-HIV chronic illnesses. Journal of Gay & Lesbian Social Services, 17(2), 1–23.
Lombardi, E., & Banik, S. (2015). Cancer care needs of transgender, transsexual, and other gender nonconforming populations. In U. Boehmer & R. Elk (Eds.), Cancer and the LGBT community: Unique perspectives from risk to survivorship (pp. 245–260). Springer International Publishing.
Lorde, A. (1980). The cancer journals. Aunt Lute Books.
Matthews, A. K. (1998). Lesbians and cancer support: Clinical issues for cancer patients. Health Care for Women International, 19(3), 193.
McCallum, E. L., & Tuhkanen, M. (Eds.). (2011). Queer times, queer becomings. State University of New York Press.
McGowan, V. J., Lowther, H. J., & Meads, C. (2021). Life under COVID-19 for LGBT+ people in the UK: Systematic review of UK research on the impact of COVID-19 on sexual and gender minority populations. BMJ Open, 11(7), e050092.
McRuer, R. (2003). As good as it gets: Queer theory and critical disability. GLQ, 9(1), 79–105.
McRuer, R. (2006). Crip theory: Cultural signs of queerness and disability. New York University Press.
McRuer, R. (2018). Crip times: Disability, globalization, and resistance. New York University Press.
McRuer, R., & Wilkerson L. Abby. (2003). INTRODUCTION. GLQ: A Journal of Lesbian and Gay Studies 9(1-2) 1–23. https://doi.org/10.1215/10642684-9-1-2-1
Monaghan, L. F., & Gabe, J. (2015). Chronic illness as biographical contingency? Young people’s experiences of asthma. Sociology of Health & Illness, 37(8), 1236–1253.
Muñoz, J. E. (2009). Cruising utopia the then and there of queer futurity. New York University Press.
Munro, M., Voight, D. M., Bryson, B. A., & Bogart, K. R. (2022). Enacted stigma experiences and identity noticeability of LGBQ+ women with rare diseases. Journal of Homosexuality, 0(0), 1–26.
Newsom, K. D., Carter, G. A., & Hille, J. J. (2022). Assessing whether medical students consistently ask patients about sexual orientation and gender identity as a function of year in training. LGBT Health, 9(2), 142–147.
Nowakowski, A., Sumerau, J. E., & Lampe, N. M. (2020). Transformations in queer, trans, and intersex health and aging. Lexington Books.
Patsavas, A. (2014). Recovering a cripistemology of pain. Journal of Literary & Cultural Disability Studies Journal of Literary & Cultural Disability Studies, 8(2), 203–218.
Perlman, G., & Drescher, J. (2005). A gay man’s guide to prostate cancer. Haworth Medical Press.
Pieri, M. (2019). The sound that you do not see. Notes on queer and disabled invisibility. Sexuality & Culture, 23, 558.
Pinto, P., Macleod, C. I., & Nhamo-Murire, M. (2022). The binary order of things: A discursive study of nursing students’ talk on providing, and learning about, LGBT patient care. Journal of Homosexuality, 0(0), 1–32.
Pound, P., Gompertz, P., & Ebrahim, S. (1998). Illness in the context of older age: The case of stroke. Sociology of Health & Illness, 20(4), 489–506.
Rankow, E. J. (1995). Breast and cervical cancer among lesbians. Women’s Health Issues, 5(3), 123–129.
Rich, A. (1980). Compulsory heterosexuality and lesbian existence. Antelope Publications.
Roseneil, S., Crowhurst, I., Santos, A. C., & Stoilova, M. (2013). Reproduction and citizenship/reproducing citizens: Editorial introduction. Citizenship Studies, 17(8), 901–911.
Samuels, E. J. (2003). My body, my closet: Invisible disability and the limits of coming-out discourse. GLQ: A Journal of Lesbian and Gay Studies, 9(1), 233–255.
Sandahl, C. (2003). Queering the crip or cripping the queer?: intersections of queer and crip identities in solo autobiographical performance. GLQ, 9(1), 25–56.
Saramago, J. (1997). All the names. Harcourt Brace & Co.
Sedgwick, E. K. (1999). A dialogue on love. Beacon Press.
Smit, P. J., Brady, M., Carter, M., Fernandes, R., Lamore, L., Meulbroek, M., Ohayon, M., Platteau, T., Rehberg, P., Rockstroh, J. K., & Thompson, M. (2012). HIV-related stigma within communities of gay men: A literature review. AIDS Care, 24(4), 405–412.
Sontag, S. (1978). Illness as metaphor. Farrar, Straus and Giroux.
St.Pierre, M. (2012). Under what conditions do lesbians disclose their sexual orientation to primary healthcare providers? A review of the literature. Journal of Lesbian Studies, 16(2), 199–219.
Sullivan, M. (2018). A crisis emerges: Lesbian health between breast cancer and HIV/AIDS. Journal of Lesbian Studies, 22(2), 220–234.
Taylor, D., & Bury, M. (2007). Chronic illness, expert patients and the care transition. Sociology of Health & Illness, 29(1), 27–45.
Toombs, S. K. (1995). The lived experience of disability. Human Studies, 18(1), 9.
Treichler, P. A. (1987, October). AIDS, homophobia, and biomedical discourse: An epidemic of signification. October, 43, 31–70.
Valdiserri, R. O., Holtgrave, D. R., Poteat, T. C., & Beyrer, C. (2019). Unraveling health disparities among sexual and gender minorities: A commentary on the persistent impact of stigma. Journal of Homosexuality, 66(5), 571–589.
van Dam, M. A. A., Koh, A. S., & Dibble, S. L. (2001). Lesbian disclosure to health care providers and delay of care. Journal of the Gay and Lesbian Medical Association Journal of the Gay and Lesbian Medical Association, 5(1), 11–19.
Walden, E. L. (2009). An exploration of the experience of lesbians with chronic illness. Journal of Homosexuality, 56(5), 548–574.
Watney, S. (1987). The spectacle of AIDS. October, 43, 71–86.
Weeks, J. (1996). Sexual cultures: Communities, values and intimacy (J. Holland, Ed.). Palgrave Macmillan UK.
Weitz, R. (1991). Life with AIDS. Rutgers University Press.
Wendell, S. (2001). Unhealthy disabled: Treating chronic illnesses as disabilities. Hypatia, 16(4), 17–33.
Williams, S. (2000). Chronic illness as biographical disruption or biographical disruption as chronic illness? Reflections on a core concept. Sociology of Health & Illness, 22(1), 40–67.
Wilton, T. (1997). Good for you: A handbook on lesbian health and wellbeing. Cassell.
Zeeman, L., Aranda, K., & Grant, A. (Eds.). (2014). Queering health: Critical challenges to normative health and healthcare. PCCS Books.
Zeeman, L., Sherriff, N., Browne, K., McGlynn, N., Mirandola, M., Gios, L., Davis, R., Sanchez Lambert, J., Aujean, S., Pinto, N., Farinella, F., Donisi, V., Niedźwiedzka-Stadnik, M., Rosińska, M., Pierson, A., Amaddeo, F., & Health4LGBTI Network. (2019). A review of lesbian, gay, bisexual, trans and intersex (LGBTI) health and healthcare inequalities. European Journal of Public Health, 29(5), 974–980.
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Pieri, M. (2023). A Queer-Crip Perspective on Chronic Illness. In: LGBTQ+ People with Chronic Illness. Palgrave Macmillan, Cham. https://doi.org/10.1007/978-3-031-22071-5_2
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