Abstract
Informed choice and consent are central tenets of Canadian health care, yet what it means to inform parents about intervention options for their disabled children depends on how disability is framed by the institution. This chapter examines how Ontario’s Infant Hearing Program (IHP) presents meanings of language and deafness to parents during their infants’ hearing screening and diagnostic process. It examines the IHP’s understandings of deafness as a “problem” that should be fixed with hearing technologies and shows how such understandings govern parents toward a “right” choice of spoken language over sign language. The author calls for reform within the process toward a more fluid and flexible understanding of language, deafness, and parental choice.
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References
Canadian Working Group of Childhood Hearing. (2005). Early hearing and communication development: Canadian working group of childhood hearing (CWGCH) Resource Document. Minister of Public Works and Government Services Canada. Retrieved November 2015, from https://publications.gc.ca/collections/Collection/H124-10-2005E.pdf
CASLPA. (2006). Position paper on cochlear implants in children. SAC-OAC. Retrieved November 2016, from http://www.sac-oac.ca/sites/default/files/resources/Cochlear_implants_%20in_children_Oct_2006.pdf
Conrad, P. (1992). Medicalization and social control. Annual Review of Sociology, 18(1), 209–232. https://doi.org/10.1146/annurev.so.18.080192.001233
Davis, L. J. (1995). Enforcing normalcy: Disability, deafness and the body. Verso.
Edelist, T. (2019). Constructing parental choice in deaf diagnostic and intervention practices in Ontario. (Publication No. 13421479) [Doctoral Dissertation, University of Toronto]. ProQuest Dissertations Publishing.
Flores, N. (2014). Creating republican machines: Language governmentality in the United States. Linguistics & Education, 25, 1–11. https://doi.org/10.1016/j.linged.2013.11.001
Foucault, M. (1978). The history of sexuality. Volume 1, An introduction. Penguin.
Foucault, M. (2003). The subject and power. In P. Rabinow & N. Rose (Eds.), The essential Foucault: Selections from essential works of Foucault, 1954–1984 (pp. 126–144). The New Press.
Government of Ontario. (2014a). Newborn hearing screening: Parents are important partners (Publication No. 018853) [Pamphlet]. Queen’s Printer for Ontario. Retrieved February 2016, from http://www.children.gov.on.ca/htdocs/English/documents/earlychildhood/hearing/screening-parents/Screening-Parents-EN.pdf
Government of Ontario. (2014b). Your baby needs a hearing assessment (Publication No. 019573) [Pamphlet]. Queen’s Printer for Ontario. Retrieved February 2016, from http://www.children.gov.on.ca/htdocs/English/documents/earlychildhood/hearing/assessment/Assessment-EN.pdf
Government of Ontario. (2014c). Your baby has passed the screening but is at risk (Publication #019609) [Pamphlet]. Queen’s Printer for Ontario. Retrieved February 2016, from http://www.children.gov.on.ca/htdocs/English/documents/earlychildhood/hearing/at-risk/At-Risk-EN.pdf
Government of Ontario. (2022a). Your baby’s hearing screen [Pamphlet]. Infant Hearing Program. Retrieved January 12, 2022, from http://www.children.gov.on.ca/htdocs/English/documents/earlychildhood/hearing/screening/HearingScreen-EN.pdf
Government of Ontario. (2022b). Infant Hearing Program. Queen’s Printer for Ontario. Retrieved January 11, 2022, from https://www.ontario.ca/page/infant-hearing-program#results
Health Care Consent Act, Government of Ontario, S.O. 1996, c. 2, Sched. A (1996). https://www.ontario.ca/laws/statute/96h02
Hughes, B. (2015). What can a Foucauldian analysis contribute to disability theory? In S. Tremain (Ed.), Foucault and the government of disability (pp. 78–92). University of Michigan Press.
Humphries, T., Kushalnagar, P., Mathur, G., Napoli, D., Padden, C., Rathmann, C., & Smith, S. (2012). Language acquisition for deaf children: Reducing the harms of zero tolerance to the use of alternative approaches. Harm Reduction Journal, 9(16), 1–9. https://doi.org/10.1186/1477-7517-9-16
Illich, I. (1977). Disabling professions. In I. Illich, K. Zola, J. McKnight, J. Caplan, & H. Shaiken (Eds.), Ideas in progress: Disabling professions (pp. 11–39). Marion Boyars.
Mauldin, L. K. (2012). Parents of deaf children with cochlear implants: Disability, medicalization and neuroculture (Publication No. 3508706) [Doctoral dissertation, The City University of New York]. UMI Dissertation Publishing.
Ministry of Children and Youth Services. (2018). Language development services guidelines: Ontario Infant Hearing Program (Version 2018.02). Retrieved January 11, 2022, from https://www.uwo.ca/nca/pdfs/clinical_protocols/IHP%20Language%20Development%20Services%20Guidelines_2018.01.pdf
Ministry of Children, Community and Social Services. (2016). Ontario Infant Hearing Program screening statistics [Data set]. Government of Ontario. Retrieved February 2018, from https://data.ontario.ca/dataset/ontario-infant-hearing-program-ihp-screening-statisticsI
Ministry of Children, Community, and Social Services. (2019, July 15). Protocol for universal newborn hearing screening in Ontario (Version 2019.01). Retrieved January 11, 2022, from https://www.uwo.ca/nca/pdfs/clinical_protocols/IHP%20Screening%20Protocol%202019.01_Final_July_2019.pdf
Mol, A. (2008). The logic of care: Health and the problem of patient choice. Routledge.
Ontario Ministry of Health and Long-Term Care. (2001). Infant Hearing Program: Universal infant hearing screening assessment and communication development: Local implementation support document.
Ontario Ministry of Health and Long-Term Care. (2002). Infant Hearing Program: Well-baby (DPOAE) screening protocol and training manual. Retrieved June 2016, from www.mountsinai.on.ca/care/infant-hearing-program/documents/midwivesprotocol.pdf
SAC. (2010). SAC Position paper on universal newborn hearing screening in Canada. Retrieved January 10, 2022, from https://www.sac-oac.ca/professional-resources/resource-library/sac-position-paper-universal-newborn-hearing-screening-2010?_ga=2.220293402.382556165.1641852772-1275366536.1641852772
SAC. (2018a). About SAC. Retrieved April 2018, from https://www.sac-oac.ca/about-sac/about-sac
SAC. (2018b). SAC position paper on cochlear implants in children. Retrieved January 11, 2022, from https://www.sac-oac.ca/sites/default/files/resources/SAC-OAC-Cochlear_Implants_PP_EN.pdf
Showalter Salas, H. (2011). Cochlear implants and deaf children. In D. Diekema, M. Mercurio, & M. Adam (Eds.), Clinical ethics in pediatrics: A case-based textbook (pp. 154–159). Cambridge University Press.
Sinai Health System. (2012). Communicating with parents: Sample scripts for each pamphlet. [Video File]. Retrieved October 2017, from https://vimeo.com/61719338
Small, A., & Cripps, J. (2012). On becoming: Developing an empowering cultural identity framework for deaf youth and adults. In A. Small, J. Cripps, & J. Côté (Eds.), Cultural space and self/identity development among deaf youth (pp. 29–41). Canadian Cultural Society of the Deaf.
Snoddon, K. (2009). American sign language and early literacy: Research as praxis (Publication No. NR61098) [Doctoral Dissertation, University of Toronto]. ProQuest Dissertations Publishing.
Sullivan, M. (2015). Subjected bodies: Paraplegia, rehabilitation, and the politics of movement. In S. Tremain (Ed.), Foucault and the government of disability (pp. 27–44). University of Michigan Press.
Titchkosky, T. (2007). Reading & writing disability differently: The textured life of embodiment. University of Toronto Press.
Young, A., Carr, G., Hunt, R., McCracken, W., Skipp, A., & Tattersall, H. (2006). Informed choice and deaf children: Underpinning concepts and enduring challenges. Journal of Deaf Studies and Deaf Education, 11(3), 322–336. https://doi.org/10.1093/deafed/enj041
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Edelist, T. (2023). Governing Deaf Children and Their Parents Through (and into) Language. In: Jeffress, M.S., Cypher, J.M., Ferris, J., Scott-Pollock, JA. (eds) The Palgrave Handbook of Disability and Communication. Palgrave Macmillan, Cham. https://doi.org/10.1007/978-3-031-14447-9_26
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