Abstract
The overarching aim of the IMAS European project was to expand the knowledge of axSpA in Europe by gathering the perspectives of patients diagnosed with the disease.
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The overarching aim of the IMAS European project was to expand the knowledge of axSpA in Europe by gathering the perspectives of patients diagnosed with the disease.
The specific objectives were as follows:
Research Objectives
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To assess the diagnostic delay in axSpA and any barriers to early detection.
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To understand the physical and psychological impact of axSpA.
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To evaluate impact of axSpA on patients’ social and professional lives.
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To describe current employment status of patients with axSpA.
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To describe the management of patients with axSpA across Europe, including pharmacologic treatment, alternative therapies, HCP visits, medical tests, and treatment goals.
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To describe the disease-related hopes and fears of patients with axSpA.
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To assess inequalities in disease management among regions and countries participating in the project.
Long-term Objectives
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To assist axSpA patient support groups by providing data to inform activities that raise disease awareness.
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To establish recommendations for the promotion of healthy lifestyles and improvement of living conditions for patients with axSpA.
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To foster closer relationships between patient organizations, HCPs, and policy makers within Europe through collaboration on the project and subsequent awareness raising activities.
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Garrido-Cumbrera, M. et al. (2022). Objectives. In: Axial Spondyloarthritis: Patient-Reported Impact in Europe. Springer, Cham. https://doi.org/10.1007/978-3-030-97606-4_2
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DOI: https://doi.org/10.1007/978-3-030-97606-4_2
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