Abstract
This chapter explores the implications of differences in belief, religion, and culture, both among different family members and between families and health care providers, and how these manifest in medical practice. The authors principally aim to provide a practical approach to ethical pediatric and cross-cultural care. Acknowledging the complexity of the clinician-parent-patient triad, it provides examples of cases involving seemingly irreconcilable differences, as well as an approach to managing them, with emphasis on the need for mediation and continued communication. It further provides a practical approach, centered on respect for persons that culminates in truly informed consent and assent, to managing conflicts between families and health care workers. It delineates three principles by which to approach disagreements about care decisions: the best interest standard; the family-centered approach; and the harm principle. The chapter concludes with a discussion of cultural competence, viewed as health services that are culturally and linguistically sensitive as well as respectful of and responsive to the health beliefs of diverse patients. It explores the notions of cultural safety and cultural humility as two fundamental components needed to realize respectful and culturally competent care.
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References
Ackerman, T.F. 2001. The ethics of drug research in children. Paediatric Drugs 3: 29–41.
Avruch, K. 1998. Culture and conflict resolution. Washington, D.C.: United States Institute of Peace Press.
Berlin, E., and W. A. Fowkes. (1983). A teaching framework for cross-cultural health care. Western Journal of Medicine 139: 934–938. Available from: http://www.pubmedcentral.nih.gov/picrender.fcgi?artid=1011028&blobtype=pdf. Accessed 28 March 2020.
Bester, J. C. 2018. The harm principle cannot replace the best interest standard: Problems with using the harm principle for medical decision-making for children. American Journal of Bioethics 18 (8): 9–19. [Taylor & Francis Online], [Google Scholar]
Canadian Paediatric Society. (2018). Cultural competence for child and youth health professionals. Retrieved from https://www.kidsnewtocanada.ca/culture/competence
Cardwell v. Bechtol. (1987). Retrieved from https://law.justia.com/cases/tennessee/supreme-court/1987/724-s-w-2d-739-2.html. Accessed 10 March 2020.
Committee on Hospital Care, American Academy of Pediatrics. (2003). Family-centered care and the pediatrician’s role. Pediatrics 112 (3 pt 1): 691–697.
Convention on the Rights of the Child. (1990). Retrieved from https://www.ohchr.org/en/professionalinterest/pages/crc.aspx. Accessed 15 February 2020.
Council of Europe. (n.d.). COMPASS: Manual for Human Rights Education with Young People. Retrieved from https://www.coe.int/en/web/compass/religion-and-belief. Accessed 2 February 2020.
Deagle, G.L. 1986. The art of cross-cultural care. Canadian Family Physician 32: 1315–1318.
Diekema, D.S. 2004. Parental refusals of medical treatment: The harm principle as threshold for state intervention. Theoretical Medicine and Bioethics 25 (4): 243–264.
Downie, R.S., and F. Randall. 1997. Parenting and the best interest of minors. The Journal of Medicine and Philosophy 22: 253–270.
Encyclopædia Britannica. (n.d.). Religion. Retrieved from https://www.britannica.com/search?query=religion+. Accessed 2 March 2020.
Ferraro, G. 1998. The cultural dimension of international business, 3rd ed. New Jersey (NJ): Prentice Hall.
Hofstede, G. 1991. Cultures and organizations: Software of the mind. London, England: Harper Collins Business.
Katz, A. L., and S. A. Webb. 2016. Committee on Bioethics. Informed consent in decision-making in pediatric practice. Pediatrics 138 (2): e20161485. https://doi.org/10.1542/peds.2016-1485
Kerr, M. E. 2000. One family’s story: A primer on Bowen Theory. The Bowen Center for the Study of the Family. http://222.thebowencenter.org
Kleinman, A. 1980. Patients and healers in the context of culture: An exploration of the borderland between anthropology, medicine, and psychiatry. Berkeley, CA: University of California Press.
Kon, A.A., E.K. Shepard, N.O. Sederstrom, S.M. Swoboda, M.F. Marshal, B. Birriel, and F. Rincon. 2016. Defining futile and potentially inappropriate interventions: A policy statement from the Society of Critical Care Medicine Ethics Committee. Critical Care Medicine 44 (9): 1769–1774.
Kopelman, L. 1997. The best interest threshold, ideal, and standard of reasonableness. The Journal of Medicine and Philosophy 22: 271–289.
Leikin, S.L. 1983. Minors’ assent or dissent to medical treatment. The Journal of Pediatrics 102 (2): 169–176. https://doi.org/10.1016/s0022-3476(83)80514-9.
De Lourdes Levy, M., V. Larcher, and R. Kurz. 2003. Ethics Working Group of the Confederation of European Specialists in Paediatrics (CESP). Informed consent/assent in children. Statement of the Ethics Working Group of the Confederation of European Specialists in Paediatrics (CESP). European Journal of Pediatrics 162 (9): 629–633.
Matsumoto, D. (1996). Culture and psychology. Pacific Grove, CA: Brooks/Cole.
Nkulu Kalengayi, F.K., A.K. Hurtig, C. Ahlm, and M. Ahlberg. (2012). ‘It is a challenge to do it the right way’: An interpretive description of caregivers’ experiences in caring for migrant patients in Northern Sweden. BMC Health Services Research 12: 433. Retrieved from http://www.biomedcentral.com/1472-6963/12/433. Accessed 20 March 2020.
Nursing Council of New Zealand. 2002. Guidelines for cultural safety, the treaty of Waitangi, and Maori health in nursing and midwifery education and practice. Wellington, New Zealand: Nursing Council of New Zealand.
Ross, L. 1998. Children, families, and health care decision-making. New York, NY: Oxford University Press.
Ross, L.F., and A.H. Swota. 2017. The best interest standard: Same name but different roles in pediatric bioethics and child rights frameworks. Perspectives in Biology and Medicine 60 (2): 186–197.
Spencer-Oatey, H. 2008. Culturally speaking. Culture, communication and politeness theory, 2nd ed. London, England: Continuum.
Spencer-Oatey, H. (2012). What is culture? A compilation of quotations. Retrieved from http://www.warwick.ac.uk/globalpadintercultural. Accessed 8 March 2020.
Tavallali, A.G., M. Jirwe, and Z.N. Kabir. 2017. Cross-cultural care encounters in paediatric care: Minority ethnic parents’ experiences. Scandinavian Journal of Caring Sciences 31: 54–62.
U.S. Department of Health and Human Services, Office of Minority Health. 2001. National standards for culturally and linguistically appropriate services in health care. Washington, D.C.: U.S. Department of Health and Human Services.
Weithorn, L.A., and S.B. Campbell. 1982. The competency of children and adolescents to make informed treatment decisions. Child Development 53 (6): 1589–1598.
Williams, R. 1999. Cultural safety—what does it mean for our work practice? Australian and New Zealand Journal of Public Health 23 (2): 213–214.
Further Reading
Derrington,k S.F., Paquette, E., Johnson, K.A.K. (2018). Cross-cultural interactions and shared decision-making. Pediatrics 142 (3): S187-S192. https://doi.org/10.1542/peds.2018-0516J
Fadiman, A. (1998). The Spirit Catches You and You Fall Down: A Hmong Child, Her American Doctors, and the Collision of Two Cultures. New York: Farrar, Straus and Giroux.
Saha, S., Beach, M.C., Cooper, L.A. (2008). Patient Centeredness, Cultural Competence and Health care Quality. Journal of the National Medical Association 100 (11): 1275–1285. https://doi.org/10.1016/s0027-9684(15)31505-4
United Nations (UN) (2014). Inter-agency support group on indigenous issues. Thematic paper on the health of indigenous peoples. UN, New York.
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Rossouw, T., Foster, P., Kruger, M. (2022). Family or Community Belief, Culture, and Religion: Implications for Health Care. In: Nortjé, N., Bester, J.C. (eds) Pediatric Ethics: Theory and Practice . The International Library of Bioethics, vol 89. Springer, Cham. https://doi.org/10.1007/978-3-030-86182-7_12
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