Abstract
Most parents-to-be hope for, and expect, a ‘normal’ baby: perfectly formed, with all its organs, limbs, muscles, and senses, and equipped to follow a normal process of growth and development. Advances in prenatal genetic testing, embryo selection, and assisted reproductive technologies seem to bring the possibility of a ‘designer baby’ within reach: a child even more precisely tailored to its parents’ dreams (Rothschild 2005). This possibility, of course, is one that does not find universal acclaim (e.g., Parens and Asch 1999). Clearly, for most parents-to-be the child they hope for will be able to see and to hear. Since the capacity to hear develops midway through a pregnancy, it is not uncommon these days for women to encourage sound perception by wearing tinkling bells or playing music to their unborn child.
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References
Blume, S. (2010): The Artificial Ear: Cochlear Implants and the Culture of Deafness. New Brunswick: Rutgers University Press.
Charmaz, K. (1991): Good Days, Bad Days. The Self in Chronic Illness and Time. New Brunswick: Rutgers University Press.
Clark, G. (2000): Sounds From Silence: Graeme Clark and the Bionic Ear Story. St Leonards, NSW: Allen and Unwin.
Cohen, N. L. (1994): The ethics of cochlear implants in young children. In: American Journal of Otology, 15, pp. 1–2.
Crouch, R. A. (1997): Letting the deaf be deaf. Reconsidering the use of cochlear implants in prelingually deaf children. In: Hastings Center Report, 27(4), pp. 14–21.
Dresser, R. (2001): When Science Offers Salvation. Patient Advocacy and Research Ethics. Oxford: Oxford University Press.
Landsman, G. (2003): Emplotting children’s lives: Developmental delay vs. disability. In: Social Science & Medicine, 56, pp. 1947–1960.
Lane, H. and Bahan, B. (1998): Ethics of cochlear implantation in young children. A review and reply from a Deaf-world perspective. In: Otolaryngology Head and Neck Surgery, 119(4), pp. 297–313.
Larson, E. (1998): Reframing the meaning of disability to families: The embrace of a paradox. In: Social Science & Medicine, 47(7), pp. 865–875.
Okubo, S., Takahashi, M. and Kai, I. (2008): How Japanese parents of deaf children arrive at decisions regarding cochlear implantation surgery. A qualitative study. In: Social Science & Medicine, 66, pp. 2436–2447.
Parens, E. and Asch, A. (1999): The disability rights critique of prenatal testing: Reflections and recommendations. Special Supplement, In: Hastings Center Report, 29(5), pp. 1–22.
Pollard, R. Q. Jr. (1996): Conceptualizing and conducting preoperative psychological assessments of cochlear implant candidates. In: Journal of Deaf Studies and Deaf Education, 1, pp. 16–28.
Rapp, R. and Faye Ginsburg, F. (2001): Enabling disability: Rewriting kinship, reimagining citizenship. In: Public Culture, 13(3), pp. 533–556.
Rothschild, J. (2005): The Dream of the Perfect Child. Bloomington: Indiana University Press.
Sach, T. H. and Whynes, D. K. (2005): Paediatric cochlear implantation: The views of parents. In: International Journal of Audiology, 44, pp. 400–407.
Scott, R. A. (1969/1991): The Making of Blind Men. A Study of Adult Socialization. New York: 1969, Russell Sage Foundation; 1991, Transaction Books.
Sparrow, R. (2010): Implants and ethnocide: Learning from the cochlear implant controversy. In: Disability & Society, 25, pp. 455–466.
Timmermans, S. and Buchbinder, M. (2010): Patients-in-waiting: Living between sickness and health in the genomics era. In: Journal of Health and Social Behavior, 51, pp. 408–423.
Van Kerschaver, E. and Stappaerts, L. (2008): Jaarrapport Gehoor 2008. Universele gehoorscreening in Vlaanderen. Doelgroep, testresultaten en resultaten van de verwijzingen [Annual report on universal hearing screening in Flanders]. Brussels: Kind & Gezin.
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© 2014 Sigrid Bosteels and Stuart Blume
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Bosteels, S., Blume, S. (2014). The Making and Unmaking of Deaf Children. In: Eilers, M., Grüber, K., Rehmann-Sutter, C. (eds) The Human Enhancement Debate and Disability. Palgrave Macmillan, London. https://doi.org/10.1057/9781137405531_5
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DOI: https://doi.org/10.1057/9781137405531_5
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